Many women with hemophilia grew up being taught to downplay their symptoms, writes columnist. That is the wrong approach.

Caregiving cuts both ways, writes columnist Allyx Formalejo this Family Caregivers Month, and not all care flows in the ...

Geneventiv said the FDA had "positive" feedback in a meeting on developing GENV-HEM, the company's gene therapy for ...

Biomarin Pharmaceutical is looking to sell off rights to Roctavian, its approved gene therapy for hemophilia A.

Columnist Allyx Formalejo reminds readers this National Epilepsy Awareness Month that some stories about epilepsy begin with ...

Columnist G Shellye Horowitz writes that postponing factor infusions may be tempting, but prophylaxis is better than a bleed.

Columnist G Shellye Horowitz learned the hard way that, as someone with hemophilia, surgical planning ahead of time is absolutely crucial.

Columnist Jennifer Lynne reflects on a powerful event that kicked off this year's Hope Conference in Orlando, Florida.

Taking charge of your health when you have hemophilia is of great importance. Regardless of your hemophilia type — A, B or C — the goal is to keep your joints strong and healthy, and to keep extra ...

Hemophilia is a rare disorder in which a person’s blood is not able to clot properly, resulting in unusually easy and prolonged bleeding. Within the blood, proteins called clotting factors normally ...

Hemophilia A is a rare genetic disorder that affects the blood’s ability to clot properly. It is the most common form of hemophilia, responsible for 80% of all cases. The condition is caused by a ...

Exercising regularly can provide many benefits for people living with hemophilia, including increased bone and joint health, stronger muscles, and improved cardiovascular health. In addition, ...