Many women with hemophilia grew up being taught to downplay their symptoms, writes columnist. That is the wrong approach.

Caregiving cuts both ways, writes columnist Allyx Formalejo this Family Caregivers Month, and not all care flows in the ...

Geneventiv said the FDA had "positive" feedback in a meeting on developing GENV-HEM, the company's gene therapy for ...

Biomarin Pharmaceutical is looking to sell off rights to Roctavian, its approved gene therapy for hemophilia A.

Columnist Allyx Formalejo reminds readers this National Epilepsy Awareness Month that some stories about epilepsy begin with ...

Columnist G Shellye Horowitz writes that postponing factor infusions may be tempting, but prophylaxis is better than a bleed.

Columnist Jennifer Lynne reflects on a powerful event that kicked off this year's Hope Conference in Orlando, Florida.

Inhibitors are one of the most severe complications of hemophilia. Caeleb’s complications didn’t stop with that diagnosis. He had at least eight ports, as they would become infected or break. Daily ...

Healing takes time, writes columnist Jennifer Lynne, who has come to believe that there’s wisdom in slowing down in all things.

Collaboration between patients and doctors is crucial, says columnist Cazandra Campos-MacDonald, who stresses the value of meeting halfway.

Taking charge of your health when you have hemophilia is of great importance. Regardless of your hemophilia type — A, B or C — the goal is to keep your joints strong and healthy, and to keep extra ...

Hemophilia B is a rare genetic bleeding disorder that impairs the blood’s ability to clot properly. It is caused by a mutation in the F9 gene, located on the X chromosome, resulting in a deficiency in ...